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Mandy posted an update 1 day, 15 hours ago
Jacob is having a few issues with nappies. He is currently wearing Huggies size 6 that are supplied by a continence team here in Kent. They are a perfect fit size wise, but are not absorbent enough, and we are having a number of leaks. This of course is generating huge amounts of washing. The Continence team only use one company…[Read more]
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jennygonzalezPW became a registered member 3 days, 13 hours ago
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Scott changed their profile picture 5 days, 19 hours ago
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Scott commented on the post, Toilets… 5 days, 19 hours ago
Hi David,
We have four of the changing places toilets in Nottingham, to use them (in Nottingham) you have to register at one of the toilets and you get issued a card, you can then use then show the card to an […]
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Scott became a registered member 5 days, 19 hours ago
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Andy Gordon became a registered member 6 days, 13 hours ago
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zocbystjpLP became a registered member 1 week ago
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David wrote a new post, Toilets… 1 week, 2 days ago
One problem that we are starting to face, (now Jacob is 5 this month – and getting bigger!) is finding somewhere suitable to change him – normal toliets just aren’t, shall we say, up to the job! We have found this […]
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Amanda Curtis-Christie changed their profile picture 2 weeks, 1 day ago
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vikki short became a registered member 3 weeks, 2 days ago
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sochjacekusAE became a registered member 3 weeks, 3 days ago
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Steve became a registered member 3 weeks, 3 days ago
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mitaczkafotografik became a registered member 4 weeks, 1 day ago
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michelle balogun posted an update 4 weeks, 1 day ago
Hi Mandy, Thanks for replying so quickly. I have had similar experiences with Matthew. He came to me when he was 2 and 1/2 with oral hypersensitivity, he had never had his teeth cleaned or put anything in his mouth, not even his own fingers apparently. He has come on in leaps and bounds, with his speech and eating the pureed foods. I do try and…[Read more]
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It is a worry, and we hope that Jacob will progress to eating orally again someday. It’s one of life’s pleasures and such a shame that he’s missing out at the moment. I’m glad to hear that Matthew is coming on well. It’s sounds to me like you’re doing a fantastic job with him and as long as he is putting on weight and is happy, what more can…[Read more]
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michelle balogun posted an update 1 month ago
Hi I look after a 5 yr old who has cerebral Palsy, I am now able to feed him pureed foods during the day, with fluids, but cannot get him to eat anything lumpy without him gagging. I do find it hard to get enough calories in him without having to increase his overnight feeds, which have been changed to the extra calorie Nutrini Energy. His O.T.…[Read more]
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Hi Michelle,
Jacob was able to cope with puréed foods before his gastric tube was fitted last march. We tried to move on to lumpy foods, and he appeared to cope well. His speech & Language lady wanted to be sure, so he had a video fluoroscopy done. This showed that he needed 4or5 swallows to clear his mouth and was at quiet a high risk of…[Read more]
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michelle balogun became a registered member 1 month ago
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Karen Cross became a registered member 1 month ago
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Amanda Curtis-Christie became a registered member 1 month ago
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David wrote a new post, Dave Lee – a sad loss 1 month ago
The Kent comedian and panto star today lost his battle against cancer.
He leaves a fantastic legacy of support for sick and disabled children. Since 1994 his charity has raised over £2 million. Find out more […] -
7800 became a registered member 1 month, 1 week ago
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Thanks Scott, sounds like Nottingham have got a good system – hopefully other cities and towns will follow.
and Welcome!