Category Archives: General Support

Just need to talk to another parent – this is the category to use…

Cerebra – Call for Parent Stories

Cerebra (a charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers) would like to hear your stories about caring for your disabled child. ‘Real … Continue reading

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Toilets…

One problem that we are starting to face, (now Jacob is 5 this month – and getting bigger!) is finding somewhere suitable to change him – normal toliets just aren’t, shall we say, up to the job! We have found … Continue reading

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Dave Lee – a sad loss

The Kent comedian and panto star today lost his battle against cancer. He leaves a fantastic legacy of support for sick and disabled children. Since 1994 his charity has raised over £2 million. Find out more here http://www.daveleehappyholidays.org.uk/

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Merry Christmas!

Merry Christmas everyone! Thanks for being part of this amazing community, hope Santa brought you all you asked for! David

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Direct Payments

We had an update meeting about Jacob’s direct payments earlier today. There are a number of different ways direct payments can be used such as: >Help with household tasks to free up your time to look after your child >To … Continue reading

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An inspirational story…

Here is some inspiration for us all – a father in Argentina has built a home-made device which has enabled his seven year old son to walk, defying doctors predictions. Click here to see

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Soft play mats – good value!

After much searching we have found a range of play mats at reasonable prices! We bought two 5′ x 3′ mats for £35 each including delivery. Jacob loves them. Click here to select

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Mummy Clip

Mandy and I have been using one of these for a while now – it’s great for hanging a small rucksack containing Jacob’s pump together with drugs, spare nappies and clothes (usual supplies!) to his pushchair. The cheapest I’ve seen … Continue reading

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Out and about with medicines….

Jacob now needs several medications throughout the day. These, like most liquid based medicines are provided in glass bottles – when we had a day out, we were concerned that these could smash. A solution is out there – one … Continue reading

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Disabled flying!

We took the boys to the Royal International Air Tattoo on Sunday and had a great day despite the ‘great British Summer!’. Met a chap from a charity called ‘aerobility’, they aim is to let profoundly ill adults and children … Continue reading

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